Pam Carpenter was diagnosed with idiopathic pulmonary fibrosis in 1992. IPF is a debilitating lung disease that causes the air sacs, or alveoli, in the lungs to scar and harden. The cause of this chronic, progressive disease is unknown, and there is no known cure or medication available to improve the condition. The scarring of the lung tissue cannot be reversed, and, as the disease progresses, breathing becomes more and more difficult.
Statistics show that the life expectancy rate after IPF is diagnosed is two to five years. But Pam is quick to tell you she is not a statistic. “I have lived with IPF for 21 years,” she explained. “I am fortunate to have a caring church and a great family support system of sisters, aunts and nieces.”
Pam currently is on oxygen 24 hours a day and is waiting for a double-lung transplant. “Each day is a new challenge,” she said. “That is why organ donation is so important to me, my husband, my daughter, my mother and my four grandsons.”
Pam is an Advocates for Hope volunteer with Gift of Hope and is encouraged “because the world of organ donation has evolved, and there are many new lifesaving techniques being explored and used,” she said. “I am also encouraged because people will read these stories and, hopefully, will feel compelled to take action about organ and tissue donation. An organ is a terrible thing to waste.”